What we’re up to… April 30, 2024 at 12:25PM

This is not how I was expecting today to go. If you are not in A&E watching a man hold your child’s airway open, if you’re not revisiting end of life care plans, if you’re not trying to make your brain accept that the unimaginable might have to fit into your today, please, god, thank your lucky stars.

I am silently screaming my despair into the void because I AM NOT READY. Please, please, please, I want to change direction (please sweet boy, change direction). Hug your children today. Just hug them and be grateful you’re not waiting for fate to decide anything for you today.

I’m meant to be posting for NKH Awareness Day, but here is all you need to know: NKH is shit. It’s awful and I hate it with every single bone in my body, and may you never, ever have to live alongside it.

Donate: https://ift.tt/fi0gqe4

Donate, because we absolutely will not let our sweet boy go without a fight.

#teammikaere #ifhnkh #faithAndFortitude

(We’re having a hard time, our boy most of all. Cross your fingers for us). from Instagram: https://instagr.am/p/C6YkTJNoRgB/