Update: on the seizures

By 10th April 2017 No Comments

Okay. So it looks like we have them under control. Ish. We’ve adjusted his meds for his recent weight gain. We give the phenobarb and sodium benzoate slowly, at the end of a feed, in the hope he’ll keep them down. If Kai doesn’t, hes already had some time to absorb the others.

So, we move forwards. Seizures are back as part of our days. We manage them. We keep them under control. We can totally do this.

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