We took this guy out adventuring this morning. It’s been a while since we used the Delta (a wheelchair appropriate for off pavements) and it was great! There’s really something about exploring in a natural setting that’s satisfying for everyone.
In saying that, it did feel like a monumental effort getting out (having to lug two wheelchairs, plus feeds and people staring as you feed by tube, the wheels were flat and we asked some kind nearby cyclists if we could borrow their bike pumps, we had to lift the wheelchair over some logs at one point, and almost got chased by some geese…) BUT our boy had a great time, and it was really wonderful to be able to make memories like today 💛🐝🥰
#nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #glycineencephalopathy #teamMikaere #theMikaereFoundation #nkhcansuckit #cure4nkh from Instagram: https://instagr.am/p/C7ZespQIXWQ/
