When Mikaere was ill and was spending 20+ hours a day sleeping, I did a thing. It’s the thing I usually do when I feel helpless, in that I can’t heal my kid. I can’t take away his NKH, or stop the seizures or fix the brain damage, I can’t do anything to help his body weather the pain, or lethargy, or do anything to ease his experience. I can’t take away NKH for him.
But I can raise money for NKH Research. I can put out a new book, and have all the royalties (every single penny) go to NKH Research. I can do that, so I did. In a week of desperation to DO something. It’s not as slick as Charlie and doesn’t have the sensory aspects. It’s not as bright as Eva, but. BUT.
It’s actually pretty wonderful. Introducing Betty, what started as an experiment with AI image generation and has resulted in a book about a bee finding her way home. It’s cuter than I expected in real life, and actually, my 3 year old toddler really loves it.
Please buy a copy, all royalties go to NKH Research at UCL (the only organisation to have published research on NKH gene therapy!).
If you can’t afford to buy a copy, will you leave a review on the listing? It literally only has to be two words (make the title something like “great!” (Or super, brilliant, amazing; fantastic – use any adjective you like!) and then in the content pick another one word adjective). It takes two seconds, and the more reviews a book has, the more likely it is that others will buy it, and we’ll be able to raise more for NKH Research.
Currently it’s available in English, and in dual language formats Portuguese, Thai and Afrikaans. Turkish and other languages coming soon! (Want to see it in a different language, request it and I’ll prioritise it for you).
Betty the bee has lost her way; now available on Amazon: https://amzn.to/3SrHTod #linkInBio👆
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