Hurrah for accessible play!! Honestly, I wasn’t sure if we were going to make it, but we did!Making as many memories as we can right now, and this was such a win 💛🥰🐝
We took Mikaere to the “Turn it Up” exhibition at the Science Museum. It had these accessible pipes that played music. It was the BEST.
#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit#cure4nkh
