How many people are needed to fix/adjust a chair? Four. Four people came for this wretched chair. It’s an R82 Xpanda, and it’s wildly adjustable and supportive for disabled kiddos like Mikaere, who need the extra bit of help to sit comfortably.
But… because of its extreme adjustability (literally every aspect of it can be adjusted), it means that things get knocked or loose or out of place and WITHIN days our boy is uncomfortable again.
Sometimes we wait for people to come fix it (the wait is always long). Sometimes we get sick of waiting and go at it with an allen key. I’m very glad we have supportive seating for our guy, for play and for eating, an alternative to his wheelchair, but I wish it was more robust. I don’t know how often I’ve fought with it to make sure my boy is comfortable!
It’s just one of the many, many aspects of our day to day. Comfortable chairs. 100% taken for granted by people who don’t need adjustable, supportive seating.
#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit
