This kid, he started the school year with an eyeroll, and a pointed “okay please go away now, Mama, I’m at school”
It means a lot of us that our boy is at a school where we work with the teaching/therapist teams, where we’re all on the same side (which is what’s best for our boy) – we’re not fighting to be heard. For him to be going somewhere where he is seen, where he is thriving, where there is trust, is everything.
I just love him so much, and he’s going to school!!
We’re grateful – here’s to another wonderful academic year! 🙌
#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit#cure4nkh#fundraising
