We’ve tried, I don’t know how many different kinds of therapies with our boy, but you know what we hadn’t tried? Massage. Mikaere used to have regular massages when he was teeny tiny, when baby massages were what you did, but there wasn’t anything on my radar for kids older than babes. So when I heard about a lady who did massage with disabled people in our area, I booked in a session.
Oh my days, Mikaere was VERY chill and relaxed for Charlie (from @accessible.massage) – it was great to see. Charlie works with people with disabilities, which was such a nice touch, she was gentle with him, able to move him safely (not always easy, he’s got no tone!), didn’t freak out when Mikaere had a seizure and just, was a joy. It was a very relaxing hour 🙂
And I’m glad, you know? Finding nice things to do for our boy feels so important, and when so many things we do with him in his body are about what he can’t do/teaching him how to xyz, massage is such a nice way for him to connect with his own body, and relax. Such a positive experience, you know?
Massage for disabled kids, such a win. I’m glad we found Charlie 🙂
#accessibleMassage#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit
