This kid, legs for daaaaays! We went out onto the common for a walk. Usually we don’t get to see awake Mikaere. He’s so busy and engaged at school that he often crashes and sleeps when he’s at home.
But, now that we’re enjoying the summer holidays, we get to see our guy awake and alert. Today he was so focused, and vocalising and happy. It was a *joy* to see. Honestly, he’s done so well at school this year, it’s really really brilliant to see him thrive, and to be able to enjoy the positive experiences he’s had 🙂
We’re in a season of calm, and honestly – it’s so good for all of us!
#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit
