We’ve recently been granted a wrap around service – which is transport to and from Mikaere’s school. Honestly, this is such a genuine blessing. We were doing manual transfers (lifting Mikaere out of his wheelchair and into his car seat) which… he’s not a small kid, you know? It was hard for him, and hard for us. It was very physically hard for everyone, and definitely had some negative impacts on Mikaere’s hip dysplasia.
So being granted school transport, that’s wheelchair accessible (and therefore doesn’t require any manual transfers) has been GAME CHANGING for us.
There is a bit of a faff around how many people are involved (between school, the council, the service, the driver, and us… communicating changes requires some coordination)
BUT I will take all the logistic faff for the ease and comfort in which our guy is taken to school.
We’re pretty lucky, I know not every family is granted this kind of service. I know there is so much fight and battling for services, so to be granted this, a service which is so desperately needed and quite drastically improves Kai’s quality of life (and dare say ours, too), I’m grateful.
I cried as I waved him off the first time. Which feels stupid, because obviously he’s been going to school for the longest time. But I did. Thankfully, his driver is the NICEST person. It feels like we really lucked out.
#SchoolTransport#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit#disabilitySupport
ID: There is a white taxi cab side on, with the door open. You can see Mikaere in his wheelchair through the door. Behind the car is a building with glass windows, and a blue sky.
