One of the things we do with Mikaere is a regular music therapy session. They’re hit and miss, sometimes he sleeps through. But sometimes he has a brilliant time, loads of engagement and smiles. We LIVE for these sessions, making happy memories, making opportunities where Mikaere find’s enjoyment. Genuinely, I feel really lucky that we’re able to find happiness in these sessions. As he gets older so many things are inaccessible or impossible, so to have these mornings, it’s everything.
#nonketotichyperglycinemia#nkh#nkhawareness#ifhnkh#metabolicdisorder#teamMikaere#glycineencephalopathy#nkhcansuckit



