Yesterday we took Mikaere trick or treating, just a small little something in our building – a handful of apartments said they’d be okay with some visits from kids and so we went floor to floor with two other families, looking for apartments with Halloween pumpkins on them. It was very sweet, our little Clark Kent had a great time!
I’d discreetly visited the places we’d planned to visit beforehand to drop off sensory toys and things for our guy, so at each visit there was something for him that wasn’t candy he couldn’t eat. He got SUPER excited with each little treat, ringing his bells, signing more. It was very, very sweet! He also got good at anticipating the knock, followed by a loud “trick or treat!”
We’re in general not a huge Halloween family, but this felt like SUCH a win for our little guy. It was small, and accessible and like, just at his level of engagement. Literally perfect!
Happy Halloween, everyone 🙂
#halloween #nonketotichyperglycinemia #nkh #nkhawareness #ifhnkh #metabolicdisorder #teamMikaere #glycineencephalopathy #nkhcansuckit






