Help us fund a cure by listening to brass bands + eating pasta

By 15th May 2017 No Comments

We’ve been trying to find our feet with fundraising. It turns out that fundraising is HARD. We know can’t continue to ask you wonderful folk of #teamMikaere to keep donating. So many of you have donated already, and we’re so so grateful. So genuinely grateful I want to hug all of you.

But every time we talk to our researchers, we get a similar message: there’s no evidence, because there’s no research. There’s no research because there’s no funding. It’s difficult to hear that, that between me and my son’s future is something as stupid as money. And as much as I’d like to be on Ellen, showing off Kai’s cute face, or coming up with the next act of viral craziness (the most marshmallows in your mouth challenge? The mannequin breaks into the running man challenge?) I really don’t think it’s going to happen. 

So. We’re trying events, things people can come to that they’d pay for anyway. Here is what we currently have:


The Fulham Brass Band Concert

When: Sunday 21st May, 3pm – 5pm (this weekend!)
Where: St Etheldreda with St Clement, Doneraile St SW6 6EL London
Tickets: £11 – http://www.wegottickets.com/event/396988

They’re doing a bake sale and a collection for Joesph’s Goal. We’re very very excited. 

It turns out two friends at our NCT group play in the The Fulham Brass Band, and they do charity concerts. This particular concert has James Fountain – the principal trumpet of the Royal Philharmonic Orchestra. They’ve spun an English composer theme, and the programme includes Queen, Andrew Lloyd-Webber, Gavin Higgins, The Beatles and Richard Rodney Bennett.

We’ll be there, if you’re in London – fancy joining us?


The Cooking School #teamMikaere Pasta Class

When: Friday 23 June, 7pm – 10pm
Where: 3 Enterprise Way, Wandsworth, SW18 1FZ
Tickets: £75 http://theavenuecookeryschool.com/shop/courses/teammikaere-charity-dinner-class/

We’ve managed to snag a class – dinner (Pear and Ricotta Ravioli with Beurre Noisette, Rocket Leaves and Shaved Parmesan), dessert (Lemon Posset with Rosemary Thins and Raspberry Coulis) and Bottomless wine (!!!!) included. 

The thing with the ticket price…. a large portion of it is donated to us. We’re so so lucky that the Avenue has agreed to help us out. Spots are limited to 24, and we’re excited! Please come. You know how much fun we are on wine.

We’re also looking at a wine tasting, a 5k, and reaching out to local businesses for christmas jumper days + schools for non-uniform days. We’re not quite sure how it’s going to go, but we’re hopeful. So so hopeful. 


If you can come to the concert, or join us for the pasta making class, that would be amazing. Please come. Please help raise the money for NKH research.

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