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About Mikaere

Our son Mikaere was born in October 2016 with Nonketotic Hyperglycinemia (NKH). It's a rubbish, horrid disorder. This is our story.

Recent Posts

  • What we’re up to… November 24, 2024 at 09:50AM
  • What we’re up to… October 11, 2024 at 10:00AM
  • What we’re up to… September 25, 2024 at 09:40PM
  • What we’re up to… September 24, 2024 at 08:27AM
  • What we’re up to… September 15, 2024 at 05:16PM

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About

Team Mikaere is for those following the journey of Sam, Elly and Mikaere - a baby boy with Nonketotic Hyperglycinemia. We've partnered with Joseph's Goal to raise funds for the NKH Research done by Dr Nick Greene as part of UCL. He's currently the world leader in NKH research.

We're so hopeful that better treatment options will be found for kids with NKH. It's so rare, less than 500 kids worldwide are diagnosed with it. Every pound we raise has a direct and profound effect on the research that can be done.

Fundraise with us

Help us raise money for NKH Research. Help us help give Kai future. It sounds so cheesy, but holds a sobering amount of truth for us. NKH is terminal, without treatment Kai may not have a future.

Please help us raise money for NKH Research.

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