On this day, 21.10.2016. I don’t have words for today. This is what NKH looks like, in the newborn stage. Lots of heartbreak and grief (and love and hope).
#nonketoticHyperglycinemia #glycineencephalopathy #raredisease #nkh #ifhnkh #metabolicDisorder #inheritedMetabolicDisorder #cureNeeded #complexmedicalneeds #nkhawareness #nkhcansuckit from Instagram: https://instagr.am/p/DBYWDBrPYmi/
