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What we’re up to… November 22, 2024 at 10:00AM

By 22nd November 2024 No Comments

Oh this day, 22nd Nov 2016. I don’t remember any of these days, either. I guess they weren’t traumatic enough to remember. Which feels nice. To know that there were just some calm, slow days.

But also – I think that time just passes. It did then, and it does now. The sun doesn’t care what is happening with us, the earth just keeps spinning and time passes whether we like it or not. Back then, time was something to be savoured. Every day was precious and now I feel like I’m disconnected from everything.

Time is happening, and it doesn’t feel precious (even though it should, I still have two young ones that won’t be young for very long). It all feels very impossible.

#nonketoticHyperglycinemia #glycineencephalopathy #raredisease #nkh #ifhnkh #metabolicDisorder #inheritedMetabolicDisorder #cureNeeded #complexmedicalneeds #nkhawareness #nkhcansuckit from Instagram: https://instagr.am/p/DCq2UpIICD4/

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