But also – I think that time just passes. It did then, and it does now. The sun doesn’t care what is happening with us, the earth just keeps spinning and time passes whether we like it or not. Back then, time was something to be savoured. Every day was precious and now I feel like I’m disconnected from everything.
Time is happening, and it doesn’t feel precious (even though it should, I still have two young ones that won’t be young for very long). It all feels very impossible.
#nonketoticHyperglycinemia #glycineencephalopathy #raredisease #nkh #ifhnkh #metabolicDisorder #inheritedMetabolicDisorder #cureNeeded #complexmedicalneeds #nkhawareness #nkhcansuckit from Instagram: https://instagr.am/p/DCq2UpIICD4/